Thursday, July 23, 2015

Advocate to Ambassador to Miles Emotional Journey.

From the minute I was officially diagnosed with Epilepsy, I have been an open book about my seizures, my struggles, accomplishments, and how far I feel like we have come with this condition. An advocate is the right word. I dabbled in the fundraising, I taught my classmates, I righted injustices where I saw fit, but it wasn't until I became a parent that I really felt this gut-wrenching need to do more.

Once I had my son, it was like a light went on that I had never known was extinguished.

 He will always be my baby

I started to think about what kind of world he would grow up in and that included the remaining stigmas for people with Epilepsy - including his own Mom. And what I wanted him to know about what I had. And if the education wasn't out there - was I really doing my job?

It was then that I realized that educating kids about Epilepsy, the brain, anti-bullying, how they can help, and telling my own personal story would get the message circulating right where it needed to be.  Fortunately, it was at this same time that an amazing girl - Cassidy Megan - was starting Purple Day! I proudly became an Ambassador for The Anita Kaufmann Foundation and, well, the rest is history.

7 years later, I am in different classrooms all the time. And, sometimes, Logan is with me. He is what brought me here and why I feel the drive to do what I do.

Logan helping with Purple Day fundraiser

Now, he is also one of my favorite walking buddies. He knows that every step he logs on his total goes to "Step Up to Epilepsy Awareness" and with the way he moves - trust me he is killing me! :)

How are your miles going? Any more to add to my Followers' Totals?

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